Select Bibliography

Anderson, M. (2000) Death in the Family, Newcastle Centre for Family Studies, http://www.nc.ac.uk/ncts/document55.html (accessed 13 April 2000)

Apter, T. (2001) The Myth of Maturity: what teenagers need from parents to become adults, New York: W.W. Norton and Co Inc.

Baldwin, S. (1985) The Costs of Caring, Families with Disabled Children, London: Routledge, and Kegan Paul.

Belshaw. S. (1999) Fly With a Miracle, London: Denor Press.

Bennett, F. and Abrahams, C. (1994) Unequal opportunities: children with disabilities and their families speak out, London: NCH Action for Children.

Beresford, B. (1995) Expert opinions: a national survey of parents caring for a severely disabled child, Bristol: Policy Press.

Bone, M. and Meltzer, H. (1989) The prevalence of disability among children, Report 3, OPCS Survey of Disability in Great Britain, London: HMSO.

Borg, T. (1999) Cancer and its consequences on sexuality, European Cancer Conference Abstract Book (ECCO 10) Sept. 12th.-16th. 1999, Vienna, Austria, :29.

Brabant, S., Forsythe, C. and McFarlain, G. (1994) Defining the family after the death of a child, Death Studies, 18: 197-206.

Brannen, J., Dodd, K., Oakley, A., and Storey, P. (1994) Young people, health and family life, Buckingham: Open University Press.

Cain, A., Fast, I. And Erikson, M. (1964) Children’s disturbed reactions to the death of a sibling, American Journal of Orthopsychiatry, Vol. 34, No. 4: 741-52

Clark, D. and Seymour, J. (1999) Reflections on Palliative Care, Buckingham, Open University Press.

Corden, A, Sainsbury, R. and Sloper, P. (2001) Financial Implications of the death of a Child, London, Family Policy Studies Centre.

Costain Schou, K. and Hewison, J., (1999) Experiencing Cancer, Buckingham, Open University Press.

Coxon, K. (2001) A Sick Joke, Guardian Education, 27.2.01: 10.

Department of Health (1995) [The Calman-Hine Report] A Policy Framework for Commissioning Cancer Services: A Report by the Expert Advisory Group on Cancer to the Chief Medical Officers of England and Wales. London: HMSO

Department of Health (2000) The NHS Cancer Plan. London: HMSO

Dobson, B. and Middleton, S. (1998) Paying to Care: the cost of childhood disability, York: Joseph Rowntree Foundation.

Field, D. Nursing the Dying, London: Tavistock/Routledge.

Giddens, A. (1991) Modernity and Self-identity: Self and Society in the Late Modern Age, Cambridge, Polity.

Gilbert, K.R. (1996) We’ve had the same loss, why don’t we have the same grief? Loss and differential grief in families, Death Studies, 20: 269-83.

Glaser, B. and Strauss, A. (1965) Awareness of Dying, Chicago: Aldine.

Grant, S. (2003) Standing on his own two feet, Felixstowe:Braiswick.

Grinyer, A. and Thomas, C. (2001a) Young Adults with Cancer: The effect on Parents and Families, The International Journal of Palliative Nursing, April, Vol. 7 No. 4: 162-170.

Hunt, M. (1991) The identification and provision of care for the terminally ill at home by ‘family’ members, Sociology of Health and Illness, 13: 375-95.

Lynam, J. (1995) Supporting one another: the nature of family work when a young adult has cancer, Journal of Advanced Nursing, 22: 116-125.

Meyerowitz, B. (2001) Sexuality and Cancer: the Personal and the Interpersonal, http://cancerresources.mednet.ucla.edu/5_info5c_archive_lec/5c03_sexuality.htm (accessed 4 Dec 2001)

Milo, E.M. (1997) Maternal responses to the life and death of a child with a developmental disability: a story of hope, Death Studies, 21 (5): 443-76

Nadeau, J.W. (1998) Families making Sense of Death, London, Sage.

Rando, T.A., (1986), The unique issue sand impact of the death of a child, in T.A. Rando, (ed) Parental loss of a child, Champaign, IL: Research Press: 5-43

Rando, T.A., (1991), Parental adjustment to the loss of a child, in D. Papadatou and C. Papadatos (eds), Children and death (pp. 233-53), New York: Hemisphere.

Raphael, B. (1983), The anatomy of bereavement, New York: Basic Books.

Reay, D., Bognold, S., Ball, S.J. and Cribb, A. (1998) “He just had a different way of showing it”: gender dynamics in families coping with childhood cancer, Journal of Gender Studies, Vol.7, No.1: 39-52.

Riches, G and Dawson, P. (2000) An Intimate Loneliness: supporting bereaved parents and siblings, Buckingham, Open University Press.

Robbins, M. (1998) Evaluating Palliative Care: Establishing the Evidence Base, Oxford: Oxford University Press.

Rosenblatt, P.C. (2000a) Help your marriage survive the death of a child, Philadelphia, Temple University Press.

Rosenblatt, P.C. (2000b) Parent Grief: Narratives of Loss and Relationship, Philadelphia, Taylor and Francis.

Seale, C. and Cartwright, A. (1994) The year before death. Aldershot: Avebury

Sloper, P. (2000) Experiences and support needs of siblings of children with cancer, Health and Social Care in the Community, Vol. 8, No. 5: 298-306.

Spinetta, J., Jankovic, M., Eden, T., Green, D., Martins, A.G., Wandzura, C., Wibur, J., and Masera, G. (1999) Guidelines for Assistance to Siblings of Children With Cancer: Report of the SIOP Working Committee on Psychosocial Issues in Pediatric Oncology, Medical and Pediatric Oncology, 33:395-398

Thornes, R. (2001) Palliative Care for Young People Aged 13-24 Years, London: National Council for Hospice and Specialist Palliative Care Services.

Walter, T. (1994) The Revival of Death. London: Routledge

Walter, T. (1996) A new model of grief: bereavement and biography, Mortality, Vol. 1, No. 1: 7-24.

Walter, T. (1999) On Bereavement: the culture of grief, Buckingham, Open University Press.

Zmuda, R.A. (2001a) Cancer, Depression and Sexuality, http://www.cancerpage.com/cancernews/cancernews1553.htm (accessed 4. Dec. 2001)

Zmuda, R. A. (2001b) Communicating Concerns About Sex and Cancer, http://www.cancerpage.com/cancernews/cancernews1433htm (accessed 4 Dec 2001)